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Thursday, September 10, 2015

Delays Update

OK, IVF posts now (working through a backlog)


I should have updated (as I said I would) after I got a response from the nurse from my e-mail in my last post. I wrote one, lost it, went on vacation and then didn't get around to it. I will try to do this briefly, so I can get to current matters.


Right after I posted, my nurse called back. She listened to me vent- and cry. I explained myself fairly reasonably:


  • I was upset that we had only one blastocyst (and thrilled that it was chromosomally normal). She assured me that her most frequent call with a PGD/PGS cycle is that there are 0 or 1 normal. She agreed though that it was disappointing that there was so few that made it to blast and thought it might be prudent to discuss with my doc.
  • I was disappointed because one of the reasons we did IVF was to create embryoS in the hopes of having TWO more kids. She knew that this was a driver for me and mentioned we should think about leaving our embryo (Surya-Scott- I'll explain later for those of you who don't get it) on ice. I explained that we are (SO) lucky to be doing insurance covered IVF and that I was told I couldn't do another cycle if I had someone frozen. She told me she would confirm but with one, at my age, with my insurance they would cover another round WHAT???? I JUST had this convo with the financial coordinator two weeks before! Sure enough, it's covered, she confirmed a few hours later.
  • I was mad that I had already been waiting 3 weeks for an appointment and now I was being asked to wait 5 more. She apologized, said that that was not how they wanted to operate and that she would work on getting my appointment moved up. Before the end of the day I was confirmed for a 8am appointment on that Friday- 3 days later. That's before my appointment would have been before it was moved! And just for perspective, ALLLLL this time I've kept you waiting for an update and I STILL wouldn't have had my follow-up yet (It would be this Friday)!
So, it was a really good call and I was really happy I made it. She had me stop the pill and then I waited for my Friday appointment.
  • My doc apologized immediately, and said something to the effect of we know this is stressful and we don't want to make excuses, but we had a new assistant and she didn't know how to book appointments and that she was let go. I felt guilty about that, but 8 weeks from retrieval to follow-up isn't acceptable. I apologized back, saying I didn't want to cause trouble.
  • He asked me how I am doing- and he means it. So I told him I was having a rough time. I told him about Baby Flynn and he cried. He is a good man. He is praying for Flynn and his family. I like him extra for that.
  • He agreed we should do another cycle. He wants to max out meds. Though my IF has been unexplained, it is now clear there are egg quality issues- which makes sense given Blue Sunday and our difficulty conceiving/ maintaining a pregnancy. I am not ready to get into my feelings of responsibility for Blue Sunday's condition.
  • He said data suggests that I will enter into DOR sooner than average, and have menopause sooner than average as well.  Boooo
As before, everything is on the table for us. We are committed to another child, we are committed to on more cycle, to transferring Surya-Scott and any other viable embryos from the additional IVF. After that- we don't know- IVF, Donor egg, donor embryo, adoption. Lots to think about.

2 comments:

  1. I know this is so tough and so overwhelming, especially when you had to wait on the clinic, but I'm glad they made everything right for you. I'm really hopeful that you will get more embies on this next round so you can have more than one baby. *hugs* girl.

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  2. I know this is so tough and so overwhelming, especially when you had to wait on the clinic, but I'm glad they made everything right for you. I'm really hopeful that you will get more embies on this next round so you can have more than one baby. *hugs* girl.

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